Resources
Our resources are grouped by Safety, Associations, Information, Living Donors/Financial Assistance, Products, Support Groups, and Care Partner Resources. Thanks to Amy Staples of Kidney Beans for providing many of these links.
Safety:
Emergency Preparedness from the Kidney Coalition on Facebook
Associations:
Alliance for Paired Donation: paireddonation.org
The American Association of Kidney Patients: www.aakp.org
American Kidney Fund: www.kidneyfund.org
The ESRD Kidney Networks: www.esrdnetworks.org
Home Dialysis Alliance: www.homedialysisalliance.org
Home Dialysis Central: www.homedialysis.org
National Kidney Donor Registry: www.kidneyregistry.org
The National Kidney Foundation: www.kidney.org
Polycystic Kidney Disease Foundation: www.pkdcure.org
The Sepsis Alliance: www.sepsisalliance.org/sepsis
Information:
Dialysis Access (fistula) explained: www.vascularweb.org/vascularhealth/Pages/dialysis-access.aspx
Dialysis Technician requirements by state: www.dialysistechniciansalary.org
Great blog on HDCentral about “compliant”: www.homedialysis.org/news-and-research/blog/63-compliance-is-a-dirty-word
Great information about kidneys: www.health.govt.nz/system/files/documents/topic_sheets/kidneys-and-kidney-disease.pdf
www.greendialysis.org website by Dr John Agar
Medical Education Institute’s Life Options: lifeoptions.org
The National Council for Aging Care’s Guide to Dialysis and Kidney Disease: http://www.aging.com/guide-to-dialysis-and-kidney-disease
online forums: ihatedialysis.com
Online resource, Restless Legs (Willis-Ekbom Disease): www.rls.org
Weighted Blanket Guides: Restless Leg Syndrome
Living Donor/Financial Assistance:
Help for finding a living donor:
Living Donors Online Message Board: livingdonorsonline.org/ldosmf
Living Kidney Donor Search: www.livingkidneydonorsearch.com
Financial Assistance for Living Donors: www.livingdonorassistance.org
Financial Fundraising Assistance: www.helphopelive.org
Financial Assistance for Recipients: www.transplants.org
Medication assistance: www.panfoundation.org
Products:
Donating medical supplies: www.medwish.org
“Help, I Need Dialysis!” BOOK: lifeoptions.org/help_book
“Bravelets” supporting the National Kidney Foundation: bravelets.com
Dialysis Arm Bands — Protect your access: dialysisarmbands.com
Dialysis CLOTHING, Ronwear: www.ronwear.com
Emergency Medical Bracelets, silicone bands: www.theidbandco.com/Medical-Bracelets
Emergency Medical Emblems: www.medicalert.org/about/our-mission
Kidney Disease Awareness Bracelets: www.facebook.com/suzikidneybracelets
Kidney Themed items for sale: www.cafepress.com/ihatedialysis
NEW MACHINE USING TAP WATER: outsetmedical.com/tablo
RSN Jewelry for a cause: www.etsy.com/shop/EmbraceHopeJewelry
Smoothie recipe book for renal and heart health: www.amazon.com/Smoothies-For-Kidneys-And-Heart
Tegaderm dressings for those with sensitive skin: www.amazon.com/3M-Tegaderm-Transparent-Dressing-Label
Support Groups:
Renal Support Network: www.rsnhope.org
Facebook:
Dialysis and Kidney Disease: www.facebook.com/groups/169168116606702
Home DialysisCentral: www.facebook.com/groups/HomeDialysisCentral
Home Dialyzors United: www.facebook.com/groups/nxstageusers
I Hate Dialysis: www.facebook.com/groups/IHateDialysis
Kidney Beans: www.facebook.com/groups/KidneyBeansSupport
Kidney Disease, Dialysis, and Transplant: www.facebook.com/groups/2229039880
Polycystic Kidney Disease Cysterhood: www.facebook.com/groups/POLYCYSTICKIDNEYDISEASECYSTERHOOD
Women-only Renal Support: www.facebook.com/groups/646627748740128
Care Partner Resources:
National Center on Caregiving: Family Care Giver Alliance
Facebook: Care-partners for Home Dialysis Support Group: www.facebook.com/groups/106259106165856