Patient Advisory Board
Linda McKenney has been on dialysis for 7 years and home hemo for 5 ½ years. She had 30 years to prepare for dialysis since her paternal grandmother died of renal failure and her dad did dialysis for 13 years. Several others in her family have also had renal failure. She has the same rare disease (Uromodulin associated kidney disease). It is a slowly progressing disease so she was able to keep her kidneys going until just a few days shy of her 62nd birthday, when she started dialysis. She wanted to do home hemodialysis from the beginning but lives alone and was told that solo HHD was dangerous. Fortunately the clinic administrator convinced the training nurse that I would be perfect for for solo HHD and I’ve been doing solo HHD for 5.5 years now.
As a retired nurse, her career included several years as an inpatient renal nurse, 10 years of emergency practice, and several years as a travel nurse. The last 10 years of her career she combined nursing with a love of computers and did data base development and management for a medical school.