April 2022 Newsletter
HDU Celebrates National Kidney Foundation's
Spring Clinicals Meeting (SCM)
SCM presents a unique opportunity for busy renal health care providers to learn about new developments related to all aspects of nephrology. This year, HDU was proud to have unprecedented representation from its Board of Directors, with members chosen to be speakers on various panels and to present posters.
The following members of HDU's
Board of Directors and/or Professional Advisory Board participated in NKF Spring Clinicals. Check out their presentations below:
Dawn partnered with another HDU member, Lisa Burgess (Behavioral Science / Thanatology undergrad, author, and care partner/mom to Dialyzor of the Month Jaime Boulanger.
Tonya Saffer and Eric Weinhandl: "Hidden Costs of Conversion from Peritoneal Dialysis to Hemodialysis" (also see this video)
HDU wants to extend heartfelt congratulations to Editor Mark Neumann of Healio and Nephrology News and Issues upon receiving the Nostradamus Award at NKF Spring Clinicals. Mark has been a longtime supporter of HDU.
Welcome to our Dialyzor of the Month
Jamie’s entire life has been a very unexpected journey. He was born with cardiac, pulmonary, renal, metabolic, and skeletal issues, just to name a few. For years, it was believed his primary immune deficiency was the main diagnosis. It would take 29 yrs and 11 months, and years of extensive testing, to diagnose him with a large, possibly fatal, chromosome 10 deletion.
When it became time for Jamie to start dialysis, the choice was clear to us, as there is truly no place like home. He started home hemodialysis in June of 2021. Managing his multiple conditions is like balancing a scale; precarious at times, but when it is right, Jamie thrives. Life became hopeful, once again.
Our main goal for Jamie has always been his quality of life. His personality is larger than life, and he enjoys each day to the fullest. HHD has given him that life back. As a “medical mom,” it is truly an honor to be my son’s care-partner.
And how about fishing! Jamie loves to fish with my husband Mark. He loves to watch wrestling and movies with his brothers, Benjamin and Dakota. Jamie wakes up with smile and has lots to look forward to each day.